In January 2023, we launched our global peer support community. Here are some things you can expect from it:

An informal WhatsApp group of other parents and adult patients where you can exchange ideas and build a support network.
Digital peer support meetings facilitated by the Foundation.
A chance to have a regular point of contact with the patient engagement team.

You may also read the community values and guidelines of our peer support group here:

Simply fill out the registration form below to sign up for our global peer support community, and if you have any questions please email us at patients@citrinfoundation.org. Please be advised that the peer support group is only available to members registered with the Foundation. If you have not registered with us, you may do so here.

Peer Support Community Registration

Name *

Email *

Whatsapp Number *

I am a *

Year of birth *

How old is your child who is a patient? *

Do you have a second child with citrin deficiency? *

How old is the second child *

Country *

Please list any topics you would like to be covered in peer support meetings *

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Global Peer Support Community

Peer Support Community Registration

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