The Foundation is working on a number of resources for patients, and you may find our informational flyers available for download below. If you have any resources that you think may be beneficial and would like to be listed, please feel free to get in touch with us here.
The Foundation has also translated some of our resources to Vietnamese. Please find it here. Quỹ cũng đã dịch một số tài liệu của chúng tôi sang tiếng Việt. Vui lòng tìm nó tại đây.
Multi-language CD Patient Booklet
The Foundation has put together a comprehensive guidebook about citrin deficiency for patients and caregivers.
The Citrin Foundation Patient Booklet has also been kindly translated into the following languages by members of our community:
- German – translated by Ms. Karoline Huemerlehner and Ms. Victoria Hahn
- Korean – translated by Mr. Yongsoo Ryu
- Vietnamese – reviewed by Dr. Nguyen Pham Anh Hoa
Please click on the respective languages below to download the PDF version of the booklet.
Age-specific Informational Flyers
Emergency Card
The patient engagement team has designed a wallet-sized patient emergency card. This card provides crucial information about the patient and their condition to ensure rapid and accurate medical attention during emergencies.
Please click on the respective languages to download the emergency card.
Guide to Calculating PFC Ratios
The Foundation has curated a comprehensive step-by-step guide to help individuals calculate their PFC (Protein-Fat-Carbohydrate) ratios with ease. This guide provides clear instructions on how to determine the macronutrient composition of meals using reliable nutritional data sources, such as the USDA database. To further simplify the process, the foundation offers a downloadable Excel spreadsheet designed to streamline calculations, allowing users to input their food choices and instantly obtain their PFC ratios. This initiative aims to empower patients and caregivers by making dietary management more accessible and efficient.
Recipes
You may find the recipe flyers prepared by the Foundation below. You can also access the web version of our Foundation’s recipes here.
A comprehensive collection of PFC-friendly recipes designed for individuals with citrin deficiency and their families.
A basic guide for individuals with CD which outlines foods that are generally safe to eat and those that should be avoided.
The Foundation has curated Spring-inspired recipes to help our members with meal planning and keeping variety in their diets.
The Foundation has put together low-carb, Autumn-inspired recipes that are both seasonal and convenient for family meals.
A resource to help parents with planning birthdays by developing recipes that balance CD dietary requirements, flavour, and ease.
A Christmas flyer with festive, creative recipes to inspire cooking and ease holiday preparations for busy parents.
A Halloween flyer filled with creative, spooky, and fun recipes which aim to spark creativity and a love for cooking among children.
A comprehensive collection of PFC-friendly recipes designed for individuals with citrin deficiency and their families.
A basic guide for individuals with CD which outlines foods that are generally safe to eat and those that should be avoided.
The Foundation has curated Spring-inspired seasonal recipes to help our members with meal planning and keeping variety in their diets.
The Foundation has put together low-carb, Autumn-inspired recipes that are both seasonal and convenient for family meals.
A resource to help parents with planning birthdays by developing recipes that balance CD dietary requirements, flavour, and ease.
A Christmas flyer with festive, creative recipes to inspire cooking and ease holiday preparations for busy parents.
A Halloween flyer filled with creative, spooky, and fun recipes which aim to spark creativity and a love for cooking among children.
Patient Stories
Our members have shared their experiences living with citrin deficiency. If you would like to share your experiences with us, please feel free to get in touch with us here.
Please find the stories below.