In January 2023, we launched our global peer support community. Here are some things you can expect from it:

• An informal WhatsApp group of other parents and adult patients where you can exchange ideas and build a support network.
• Digital peer support meetings facilitated by the Foundation.
• A chance to have a regular point of contact with the patient engagement team.

You may also read the community values and guidelines of our peer support group here:

Simply fill out the registration form below to sign up for our global peer support community, and if you have any questions please email us at patients@citrinfoundation.org. Please be advised that the peer support group is only available to members registered with the Foundation. If you have not registered with us, you may do so here.