Interview with Carson Kawabata
Interview with Carson Kawabata Summary In this interview, Shaima, our Patient Engagement Manager, speaks to Carson Kawabata about the challenges that he has faced with citrin deficiency. Throughout the interview, Carson touches upon themes of identity and community. Interview Transcript (edited for [...]
Never forget that phone call
Never forget that phone call BY: JEFF TSAO AND SANDRA TEIXEIRA Our daughter was born early (almost 34 weeks) at 3 lbs and 3 oz. She was admitted to the NICU immediately, and we thought that the NICU would be the most difficult challenge [...]
Summary of daily food intake in citrin deficiency patients
*The content of this page is a summary of Dr. Okano’s original paper. It was prepared by Dr. Okano for the patient page, to allow the general public to understand the findings of his research. Dr. Okano is an extraordinary doctor who always has the best interest of patients [...]
Macronutrients
There are 3 main nutrients found in food, namely carbohydrates, fats, and protein. Most people obtain their energy from carbohydrates and after that has been used, they will obtain energy from fat. Compared to carbohydrates and fat, protein is not a very efficient source of energy and is mainly [...]
The first signs of citrin deficiency
The first signs of citrin deficiency BY: ANONYMOUS The first signs of citrin deficiency I gave birth to my son at 38 weeks, and he weighed 2.9kg. At birth, we were told that he did not have jaundice, and he was perfectly normal. [...]