Interview with Carson Kawabata
Interview with Carson Kawabata Summary In this interview, Shaima, our Patient Engagement Manager, speaks to Carson Kawabata about the challenges that he has faced with citrin deficiency. Throughout the interview, Carson touches upon themes of identity and community. Interview Transcript (edited for [...]
Who is Carson Kawabata?
Who is Carson Kawabata? BY: CARSON KAWABATA Muhammad Ali once said, "He who is not courageous enough to take risks will accomplish nothing in life." My name is Carson Kawabata, I am currently 17 years old, and I live in Salt Lake City, [...]
Who is Akemi Kawabata?
Who is Akemi Kawabata? BY: AKEMI KAWABATA Walt Disney once said, "The way to get started is to quit talking and begin doing." My name is Akemi Kawabata, I am currently 11 years old, and I live in Salt Lake City, Utah. When [...]
The Unexpected ICU Admission Where Our Son Was Diagnosed with Citrin Deficiency
The Unexpected ICU Admission Where Our Son Was Diagnosed with Citrin Deficiency BY: JO FAN & REBECCA Initial signs Our son Z was born full term at 2.57 kg. In fact, before the delivery, our gynaecologist suggested that we do C-section because the [...]
Our Story
Our Story BY: ANITA DIMITROVA AND STEFAN BARZAKOV My son Stefan was born at 38th gestation week because he has stopped growing and our doctor was very concerned with what was happening. His birth weight was 2,55kg. After his birth, his hemoglobin was [...]